Rep. Calvert Praises Passage of the ACT for ALS Reauthorization Act

July 22, 2026 Press Release Today, Congressman Ken Calvert (CA-41) praised the unanimous passage of the ACT for ALS Reauthorization Act, H.R. 8205. Rep. Calvert was the Republican lead cosponsor of the bill and serves as a Co-Chair of the House ALS Caucus. The bill reauthorizes programs that support research and development of drugs and other therapies to address ALS. Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease, is a progressive, fatal neurological disease. “ As a Co-Chair of the bipartisan ALS Caucus, the effort to get the landmark ACT for ALS law across the finish line in 2021 was the result of the passion and determination of the ALS advocacy community,” said Rep. Calvert . “Working with my Appropriations Committee colleagues, the ALS Caucus, and ALS advocates, we have been successful at making historic investments into these programs. As families impacted by ALS know all too well, we have more work to do. That is why taking this step today, and reauthorizing the ACT for ALS Act, is essential. I want to thank Members of the ALS Caucus, including the bill’s sponsor Congressman Quigley, for their work. And I want to give my heartfelt appreciation, once again, to the ALS advocacy community and the families who have been forever changed by ALS.” "Today's news is a lifeline for those living with ALS, for whom every day matters,” said I AM ALS CEO Andrea Goodman . “This community is counting on this funding for research and access to promising therapies. ACT for ALS has already built a system for research, provided access to promising treatments for almost 1,000 patients who wouldn’t have otherwise qualified, brought hope and attention to this devastating disease, and brought us closer than ever to a cure. We are so grateful to Rep. Ken Calvert for his unwavering support for the ALS community, from co-writing the original ACT for ALS Act to leading the charge to get this reauthorization to the House floor. We're urging every member of the House to vote yes, and we won't stop pushing until this bill is signed into law." “Today’s passage of the ACT for ALS Reauthorization Act is an important milestone for people living with ALS and their families,” said Sheri Strahl, MPH, MBA, President and CEO of ALS Network . “ACT for ALS has opened new pathways for research and access to investigational therapies, and this vote brings us one step closer to ensuring this important work can continue. We are deeply grateful to Representatives Quigley and Calvert for their bipartisan leadership and to the House for its continued support of the ALS community as we work toward final passage.” "Today’s passage of the ACT for ALS Reauthorization Act keeps the momentum going toward defeating ALS,” said Calaneet Balas, President and CEO, ALS Association . “This is an investment in hope, innovation, and in the very people impacted by this disease. By working to extend these programs, Congress is reaffirming that people living with ALS cannot wait. This action will help drive the next generation of science, expand opportunities for participation in research, and bring us closer to making ALS livable until it is cured." ###