***MEDIA ADVISORY*** Sen. Johnson to Hold Press Conference: “Duchenne Families Fight to Maintain Access to Existing Treatment”

***MEDIA ADVISORY*** Sen. Johnson to Hold Press Conference: “Duchenne Families Fight to Maintain Access to Existing Treatment”
March 9, 2026
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WASHINGTON
– On Tuesday, U.S. Sen. Ron Johnson (R-Wis.) will host a press conference in the Senate Swamp alongside patients and families who are losing access to ataluren, a treatment used for years by individuals with Duchenne muscular dystrophy.
WHAT:
“Duchenne Families Fight to Maintain Access to Existing Treatment”
WHO:
Senator Ron Johnson, Duchenne muscular dystrophy patients and families
WHEN:
Tuesday March 10, 2026 at 2:00 PM ET
WHERE:
Senate Swamp
WATCH:
Tune in live on X @
SenRonJohnson
and
Rumble
.
NOTE:
Credentialed media may RSVP to
press@ronjohnson.senate.gov
to attend.
###