Senator Kim Introduces Bill to Eliminate Delays for Americans with Disabilities to Receive Social Security and Medicare Benefits

WASHINGTON, D.C. – Today, Senator Andy Kim (D-N.J.) introduced legislation to eliminate the delay leaving Americans with disabilities waiting months to years for their Social Security Disability Insurance (SSDI) and Medicare benefits. “It is horrifying that any American should be forced to endure months or even years of waiting for benefits they worked hard to earn. Care cannot be put on hold. Congress needs to step up for our disability community and end these harmful waiting periods once and for all,” said Senator Kim. The Government Accountability Office found that between Fiscal Year 2008 and Fiscal Year 2019, over 109,000 individuals died while awaiting a determination of their SSDI application. And in 2023, approximately 30,000 Americans died while waiting. An estimated 1.8 million people with disabilities are caught up in the Medicare waiting period at any given time. Workers who become disabled can qualify for Social Security Disability Insurance (SSDI) payments, but the process to apply for benefits is slow, and even once an individual qualifies, there is a statutory five-month waiting period before they receive their first disability check, and 24 months before becoming eligible for Medicare insurance coverage. In total, individuals face a 29-month waiting period from the onset of disability before fully receiving their SSDI benefits. Senator Kim’s Stop the Wait Act specifically would: Phase out the five-month waiting period for SSDI benefits over the next five years, eliminating it entirely by 2031; and Eliminate the 24-month waiting period for Medicare disability benefits for individuals who are uninsured or unable to afford health insurance. The legislation is co-sponsored by Senators Patty Murray (D-WA), Tammy Duckworth (D-IL), Kirsten Gillibrand (D-NY), Elizabeth Warren (D-MA), Alex Padilla (D-CA), Mazie Hirono (D-HI), Bernie Sanders (D-VT), Ed Markey (D-MA) and endorsed by: Federation of American Hospitals, American Association of People with Disabilities, UnidosUS, The Arc, Alzheimer’s Association, Alzheimer’s Impact Movement, Autism Society of America, Autistic Self Advocacy Network, Little Lobbyists, American Lung Association, American Council of the Blind, National Down Syndrome Congress (NDSC), National Brain Tumor Society, National Multiple Sclerosis Society, Muscular Dystrophy Association, The Spina Bifida Association, Christopher & Dana Reeve Foundation, Epilepsy Foundation, Solve M.E./Solve Long COVID Initiative, COVID-19 Health and Safety Taskforce (CHeST), Pandemic Patients, National Alliance on Mental Illness (NAMI), National Disability Institute, Families USA, National Association of Councils on Developmental Disabilities, Social Security Works, Strengthen Social Security Coalition, Alliance for Retired Americans, Justice in Aging, Association of People Supporting Employment First (APSE), National Academy of Elder Law Attorneys (NAELA), National Organization of Social Security Claimant Representatives (NOSSCR), National Association of Disability Representatives (NADR), National Disability Rights Network (NDRN), Paralyzed Veterans of America, Special Needs Alliance, American Network of Community Options and Resources (ANCOR), American Association on Health and Disability, Center for Law and Social Policy, Lakeshore Foundation, Community Legal Services of Philadelphia, Public Citizen, Caring Across Generations, Center for Medicare Advocacy, Medicare Rights Center, Access Ready, Easterseals, United Spinal Association, Lutheran Services in America, Association of Assistive Technology Program, American Civil Liberties Union (ACLU), National Domestic Workers Alliance, Care in Action, and AFL-CIO. “For families already stretched thin by caregiving, every month without health coverage is a month of impossible choices. The Stop the Wait Act closes a dangerous gap where people with disabilities are approved for support but still forced to wait years for the coverage that makes it possible to actually use it. No one’s health should have a waiting period,” Nicole Jorwic, Chief Program Officer at Caring Across Generations. “The five-month SSDI waiting period and the two-year Medicare waiting period unjustly deny people with disabilities the income and health benefits they earned when they need them most. These delays aren’t just cruel, they’re dangerous because many people are forced to put off necessary medical care,” said Darcy Milburn, Director of Social Security and Healthcare Policy, The Arc of the United States. “As people with disabilities face ever-higher prices for basic necessities and rising healthcare costs, ending these waiting periods is more important than ever. We strongly endorse the Stop the Wait Act.” “Waiting periods for SSDI can be deadly for disabled people. The Stop the Wait Act will allow workers with disabilities to access the benefits they have earned and get the healthcare they need to survive,” said Michael Lewis, Vice President of Policy, American Association of People with Disabilities. ###